The Lived Experience of Adherence to HIV medication in the context of addiction and homelessness; a qualitative study of a Blood Borne Virus Unit in Dublin City
Description:
In 2017 The Global Health Observatory estimated that there are 36.9 million people worldwide living with HIV/AIDS (WHO 2017). The rates in Ireland are increasing and people who Inject drugs account for 5% of the total diagnoses in Ireland. Research studies and health strategies emphasize the importance of adherence to HAART (HIV Medication) to avoid viral replication and personal/public health consequences. However, it is evident that addiction and homelessness can contribute to non-adherence to medical and pharmacological treatment for a range of diseases (Hinkin 2007). Explanations have been put forward in the research including, lack of structure/routine, cognitive impairment caused by drug use, lack of motivation/worth, lack of facilities to store and take medication. While research studies have been carried out regarding clinical manifestations and prevalence of co-morbidity as well as rates of HIV medication adherence, there are few qualitative studies containing more in depth explorations which capture the voices and perspectives of those encountering complexities and challenges. There is little exploration concerning the effects of homelessness/addiction on adherence to ART’ in the literature.
Currently there are calls for public and patient involvement/engagement in research in this area in order to fully understand lived experience and develop innovative person centred approaches to support HIV treatment adherence in this challenging context. The proposed research, using IPA methodology with 12 participants receiving services at Dublin Simon Community Blood Borne Virus Unit, aims to fill this gap in the literature and to contribute the voices, knowledge and expertise of persons directly affected to service planning and support initiatives. Research on adherence to Blood Borne Virus medication and treatment is essential for gaining knowledge and insight which in turn can be used to improve treatments aimed at suppressing viral loads. This knowledge also has benefits for healthcare professionals as they engage with clients in the context of homelessness and addiction to support them to achieve adherence. It is anticipated that the findings, discussion and recommendations from the study will contribute to Improved understanding of the needs of this population and more sensitive client centred approaches
Dates: September 2019 - September 2021 (2 year Research MSc)
Researcher: Eavanna Maloney
Supervisors: Majella Darcy, DSC & Briege Casey, DCU.
Funding: Irish Research Council /Dublin Simon Community Employment Based Programme.